Rose and the Wild Fox

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233/365

Posted on August 21, 2014 by Rose and the Wild Fox

A portrait of my daughter every day in 2014

Bedtime stories the past few days have been of the Sally Mann and Elinor Carucci variety. This kid has good taste in photography.

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One thought on “233/365”

stephanielowden

August 21, 2014 at 10:46 pm

Yes, She pulled Sally Mann out last night.

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I’m not sure that I’m capable of putting into words yet what this weekend meant for us. Family Heart Camp was amazing, and overwhelming, and wonderful. Spending the weekend with 55 other families who have kids just like ours was so, so much. Seeing my kid, who often feels like the only kid who had heart surgery realize that every family there had a kid like her was amazing. Watching kids like her get up on stage in the talent show and sing was almost more than I could handle and felt so much bigger than just a kid in a talent show. There were parts that felt so incredibly heavy and parts that felt immensely liberating. It was so much of what she’s needed since April, but clearly not enough to satisfy her. She swears she’s going to camp overnight this summer, and as much as I don’t feel ready, if she is I’ll support her completely. And also book a hotel in town and spy with binoculars. #campodayin #chd #ebsteinsanomaly #heartkid #heartwarrior #heartmama

Me and my girl got new matching hats at Heart Camp. My baby girl got herself some hot chocolate in lieu of a hat. #campodayin #heartkid #heartmama

This kid is forever fancy.

Maleficent and one of the Dark Fae.

Miles and Gwen shut down con. Which apparently has its perks.#wizardworldmadison #wizardworld #spidergwencosplay #milesmorales

Yesterday morning I decided I needed to make us all matching tops with my rainbow floral wars fabric. I managed to make them in twelve hours, including the time we spent at con yesterday. I might even have enough fabric left to make one of us a beanie, because I love beanies. #mamamade #floralwars #knitoriousfabric #wizardworld #wizardworldmadison

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