Surgery

We report bright and early tomorrow morning for surgery. I plan to post most of my updates on Instagram, because it’s easiest. You can follow along at https://www.instagram.com/roseandthewildfox/. Please keep her in thoughts tomorrow, send love and light, prayers, pixie dust and any other form of well wishes.

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The First Step

This girl took the first big step in her heart journey today. She had a cardiac catheterization, which involved an electrophysiology study. In non technical terms, that means they used tubes and wires to check out the electrical pathways and conduction in her heart.

She did amazing. She was so much calmer than I expected before the procedure. We gave her a new sketch book and markers and she got lost in her own world of art.

She threw them a little curve ball during the procedure, it turns out she has one more little anomaly, that being that she doesn’t have venous access to her heart through her legs. Which basically means the veins from her groin that they usually use, don’t actually travel all the way to her heart in the way they’d expect. So they had to go in through her neck to do the procedure. The plan was to track down any accessory pathways, and get rid of them, but she didn’t end up having any so in a way we got lucky.

She’s home now. Resting, albeit somewhat uncomfortably. Slowly getting back to herself. She’s supposed to be back to normal by the weekend. She gets to come off one of her medications now too.

She was so brave, and did so well. I could not be more proud of her. It gave us a small glimpse of what to expect when she has her big surgery next month. It’s an experience I’m dreading, but plan to embrace and face with as much courage as she showed today.

I can do hard things. Because she has to do hard things. That mantra will be running through my head for the foreseeable future.

We can do hard things.

The Night Bakery, no more

Rose and the wild fox announcement photo.jpg

This space has felt mislabeled to me for quite some time now.  It’s pretty clear I don’t post recipes here any longer.  So it felt like time for a change.  I know when it comes time for surgery that there will likely be many people who want updates along the way, and getting texts or messages or emails asking for them sounds like a lot.  So I think this space will be where I provide those updates.  And it felt right to change the name ahead of that timing.  So here it is, Rose and the Wild Fox.  A space with loads of possibilities and new directions.

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A portrait of sleep in my family every week in 2018

I somehow got off on my numbering this year. Life with two kids I guess. I realized today that although I completed this project, it wasn’t exactly what I set out to do. I was hoping to use my actual camera more often and do some longer exposures. In a way I’d love to leave it set up and make the same photograph every day or every week. But I’d need to somehow remember to do that, and frankly my brain, and my life, are just too full.

I’ve decided for the first time in six years not to do a year long project in 2019. I had wanted to do a 365, but knowing what this next year holds for us it just doesn’t feel realistic. I do plan to share photos here, and hope to make them often throughout the year. Maybe 2019 will be the year I repurpose this space, as the name doesn’t feel as fitting anymore. But in a way it feels sort of freeing, to not have a weekly task to hold myself to. I’m hopeful it will make my images more intentional, and less of a chore. Here’s to starting the new year without any goals, and just letting life unfold.

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A portrait of sleep in my family every week in 2018

They are seriously snuggly in their sleep. The baby likes to sleep on top of people and has recently started sleeping on top of her sister as well.

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A portrait of sleep in my family every week in 2018

I wonder if I’ll find other babies bellies as adorable as my own kids once they outgrow their youth. I literally want to chomp on that little belly every time I see it hanging out.

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A portrait of sleep in my family every week in 2018

Her sleep has been all sorts of wonky lately, including the awesome middle of the night prolonged wake ups. Which leads to random mid afternoon naps in whatever place is available.