Rose and the Wild Fox

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Posted on July 10, 2014 by Rose and the Wild Fox

A portrait of my daughter every day in 2014

Watching “kitties” before bed. Antibiotics seem to be helping, so dear girl enjoy the tv now as it won’t be on again when you’re well!

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My girl is 4 months post op and has a fresh haircut. #ebsteinsanomaly #chd #chdawareness #heartwarrior

Somehow we ended up on the topic of her surgery recently(like we do around here), and I casually joked that it seems so distant already, that at times I forget for a moment. I asked her if she ever forgets. And she looked at me straight in the eye, and deadpan answered “no”. She went right back to playing like it was no big deal. It’s caused me a bit of guilt, because I think the stress and PTSD sort of makes me forget, for my own sanity, but for her it’s always there. I notice her unconsciously touching her scar every day, choosing clothes that show it off, hear her playing games with toys about surgery and oxygen. It was a little bit of a kick in the face, to remind me that this disease, or defect or whatever you want to call it, is only repaired and never cured. #ebsteinsanomaly #chd #chdawareness

I had a rough afternoon with these two today. Well, mostly just that little one. She was so full of screaming, crying and tantrums for pretty much three hours straight. I had clearly hit my limit at bedtime when my husband came in the room while I was getting them ready for bed, and told us all he was sorry we were having a hard day and that it’s really hard creating greatness. And then I was looking through my phone and saw this photo. Of my big kid carrying her baby sister. That baby has now ditched overnight diapers and insists that she’s already three (she’s not). That big kid yanked her loose tooth out herself tonight. And yes, those moments like today suck. Being screamed at for a few hours would stress anyone out. But these kids, they’re my purpose. They’re everything for us. And they are amazing.

Food festival babies. The miso butterscotch budino was definitely my favorite. Closely followed by the Korean fried chicken in a waffle cone with soft serve. I haven’t seen that picky two year old eat that much food in a long time. #yumyumfest

Hello festival going teenager, where the hell did you come from?

#makingsummercount

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